Primary Purpose
| primary_purpose | Study_Count |
|---|---|
| Treatment | 42 |
| Diagnostic | 9 |
| Other | 5 |
| Basic Science | 4 |
| Supportive Care | 4 |
| Prevention | 3 |
| NA | 1 |
Craig Mayer, Nick WIlliams, Vojtech Huser
Lister Hill National Center for Biomedical Communications, National Library of Medicine, NIH, Bethesda, MD
See the full regCTG repository at https://github.com/lhncbc/CRI/tree/master/regCTG
To return to the list of conditions and view other reports go to https://lhncbc.github.io/CRI/regCTG/regCTG-condition_report_links.html
| Type | Study_count |
|---|---|
| Total_Studies | 122 |
| interventional | 68 |
| Observational | 44 |
| Registry | 10 |
```
| intervention_type | Study_Count |
|---|---|
| Drug | 18 |
| Drug|placebo | 14 |
| Other | 12 |
| Behavioral | 6 |
| Device | 6 |
| Dietary Supplement | 3 |
| Procedure | 2 |
| Behavioral|Diagnostic Test|Dietary Supplement|Procedure | 1 |
| Biological | 1 |
| Biological|placebo | 1 |
| Device|Other | 1 |
| Dietary Supplement|Other | 1 |
| Dietary Supplement|placebo | 1 |
| Genetic | 1 |
| Country | Study_Count |
|---|---|
| United States | 19 |
| United Kingdom | 5 |
| Denmark | 4 |
| Spain | 4 |
| Brazil | 3 |
| France | 3 |
| Germany | 3 |
| NA | 3 |
| Netherlands | 3 |
| Canada | 2 |
| United States|Israel | 2 |
| Belgium|Denmark|France|Germany|Netherlands|United Kingdom | 1 |
| Greece | 1 |
| Hong Kong | 1 |
| Israel | 1 |
| Italy | 1 |
| Japan | 1 |
| Japan|United States|Australia|Brazil|Bulgaria|Canada|China|Hong Kong|India|Jordan|Korea, Republic of|Malaysia|Mexico|Poland|Puerto Rico|Russian Federation|Sri Lanka|Taiwan|Thailand|Turkey | 1 |
| Norway | 1 |
| Poland | 1 |
| United States|Australia|Belgium|Brazil|Bulgaria|Canada|Chile|Czechia|France|Germany|Israel|Italy|Korea, Republic of|Poland|Spain|Sweden|Switzerland|Turkey|United Kingdom | 1 |
| United States|Australia|Belgium|Brazil|Canada|Chile|Czechia|France|Germany|Israel|Italy|Korea, Republic of|Poland|Spain|Sweden|Switzerland|Turkey|United Kingdom | 1 |
| United States|Australia|Brazil|Czechia|France|Germany|Italy|Japan|Korea, Republic of|Mexico|Sweden | 1 |
| United States|Bulgaria|Canada|France|Israel|Italy|United Kingdom | 1 |
| United States|Canada | 1 |
| United States|Canada|France|Germany | 1 |
| United States|Denmark | 1 |
| United States|France|United Kingdom | 1 |
| Site_count | Study_Count |
|---|---|
| 1 | 45 |
| 2 | 7 |
| 3 | 1 |
| 4 | 3 |
| 7 | 2 |
| 8 | 2 |
| 9 | 1 |
| 13 | 1 |
| 17 | 1 |
| 35 | 1 |
| 55 | 1 |
| 58 | 1 |
| 80 | 1 |
| 86 | 1 |
| Phase | Study_Count |
|---|---|
| N/A | 32 |
| Phase 2 | 10 |
| Phase 1 | 8 |
| Phase 3 | 8 |
| Phase 1/Phase 2 | 5 |
| Phase 4 | 5 |
| Number_of_Arms | Count_of_Studies |
|---|---|
| 1 | 16 |
| 2 | 33 |
| 3 | 10 |
| 4 | 1 |
| 5 | 1 |
| 8 | 1 |
| NA | 6 |
| Measure | N.A | Phase.1 | Phase.1.Phase.2 | Phase.2 | Phase.3 | Phase.4 |
|---|---|---|---|---|---|---|
| Min. | 1.0000 | 4.000 | 7.0 | 8.0 | 25.00 | 6.00 |
| 1st Qu. | 19.0000 | 9.000 | 18.0 | 19.5 | 134.75 | 9.00 |
| Median | 23.5000 | 19.500 | 24.0 | 38.0 | 186.50 | 25.00 |
| Mean | 71.0625 | 22.875 | 29.6 | 62.7 | 204.50 | 27.25 |
| 3rd Qu. | 52.5000 | 26.000 | 36.0 | 57.5 | 235.00 | 43.25 |
| Max. | 456.0000 | 72.000 | 63.0 | 250.0 | 519.00 | 53.00 |
| group_type | Group_Count |
|---|---|
| Experimental | 76 |
| Placebo Comparator | 22 |
| Active Comparator | 16 |
| No Intervention | 13 |
| NA | 6 |
| Other | 1 |
| Sham Comparator | 1 |
| intervention_model | Study_Count |
|---|---|
| Parallel Assignment | 37 |
| Single Group Assignment | 21 |
| Crossover Assignment | 4 |
| Sequential Assignment | 3 |
| NA | 2 |
| Factorial Assignment | 1 |
| primary_purpose | Study_Count |
|---|---|
| Treatment | 42 |
| Diagnostic | 9 |
| Other | 5 |
| Basic Science | 4 |
| Supportive Care | 4 |
| Prevention | 3 |
| NA | 1 |
| Country | Study_Count |
|---|---|
| United States | 19 |
| NA | 4 |
| Denmark | 3 |
| United Kingdom | 3 |
| France | 2 |
| Germany | 2 |
| Brazil | 1 |
| Egypt | 1 |
| Italy | 1 |
| Singapore | 1 |
| Singapore|Australia|Brazil | 1 |
| Switzerland | 1 |
| Turkey | 1 |
| United States|Austria|China|France|Germany|Italy|Japan|Netherlands|United Kingdom | 1 |
| United States|Belgium|Canada|France|Germany|Italy|Spain | 1 |
| United States|Canada|France|Germany|United Kingdom | 1 |
| United States|United Kingdom | 1 |
| Site_count | Study_Count |
|---|---|
| 1 | 39 |
| 4 | 1 |
| 8 | 2 |
| 13 | 1 |
| 15 | 1 |
| Measure | Observational |
|---|---|
| Min | 10.0000 |
| 1st Qu | 35.0000 |
| Median | 80.0000 |
| Mean | 594.0698 |
| 3rd Qu | 198.5000 |
| Max | 6000.0000 |
| observational_model | Study_Count |
|---|---|
| Cohort | 23 |
| Case-Only | 6 |
| Case-Control | 5 |
| Other | 4 |
| NA | 3 |
| Family-Based | 2 |
| Case Control | 1 |
| time_perspective | Study_Count |
|---|---|
| Prospective | 20 |
| Cross-Sectional | 12 |
| Other | 4 |
| Retrospective | 4 |
| NA | 4 |
| Country | Study_Count |
|---|---|
| United Kingdom | 4 |
| China | 1 |
| Egypt | 1 |
| NA | 1 |
| United States | 1 |
| United States|Australia | 1 |
| United States|Bulgaria|Canada|France|United Kingdom | 1 |
| Site_count | Study_Count |
|---|---|
| 1 | 8 |
| 2 | 1 |
| 5 | 1 |
| Measure | Registries |
|---|---|
| Min | 25.0 |
| 1st Qu | 225.0 |
| Median | 334.5 |
| Mean | 2577.4 |
| 3rd Qu | 875.0 |
| Max | 20000.0 |
| observational_model | Study_Count |
|---|---|
| Cohort | 5 |
| Case-Only | 3 |
| Other | 2 |
| time_perspective | Study_Count |
|---|---|
| Prospective | 10 |
| target_duration | Study_Count |
|---|---|
| 5 Years | 5 |
| 1 Day | 1 |
| 1 Year | 1 |
| 100 Years | 1 |
| 15 Years | 1 |
| 3 Years | 1 |
#If less then 500 trials
| nct_id | brief_title | link | overall_status | source | primary_completion_date |
|---|---|---|---|---|---|
| NCT04141670 | S 48168 (ARM 210) for the Treatment of RYR1-related Myopathies (RYR1-RM) | https://ClinicalTrials.gov/show/NCT04141670 | Recruiting | Armgo Pharma, Inc. | 2021-05-30 |
| NCT04033159 | Early Phase Human Drug Trial to Investigate Dynamin 101 (DYN101) in Patients ≥ 16 Years With Centronuclear Myopathies | https://ClinicalTrials.gov/show/NCT04033159 | Recruiting | Dynacure SAS | 2022-04-30 |
| NCT03979157 | Non-invasive Molecular Imaging of Muscle Structure (MSOT_muscles) | https://ClinicalTrials.gov/show/NCT03979157 | Completed | University of Erlangen-Nürnberg Medical School | 2019-11-11 |
| NCT03406780 | A Study of CAP-1002 in Ambulatory and Non-Ambulatory Patients With Duchenne Muscular Dystrophy | https://ClinicalTrials.gov/show/NCT03406780 | Completed | Capricor Inc. | 2020-03-10 |
| NCT03199469 | Gene Transfer Clinical Study in X-Linked Myotubular Myopathy | https://ClinicalTrials.gov/show/NCT03199469 | Active, not recruiting | Audentes Therapeutics | 2024-03-31 |
| NCT03179631 | Long-Term Outcomes of Ataluren in Duchenne Muscular Dystrophy | https://ClinicalTrials.gov/show/NCT03179631 | Recruiting | PTC Therapeutics | 2023-09-05 |
| NCT03267277 | Sodium Thiosulfate for Treatment of Calcinosis Associated With Juvenile and Adult Dermatomyositis | https://ClinicalTrials.gov/show/NCT03267277 | Recruiting | National Institutes of Health Clinical Center (CC) | 2022-07-31 |
| NCT03092167 | Physical Training in Patients With Idiopathic Inflammatory Myopathies | https://ClinicalTrials.gov/show/NCT03092167 | Recruiting | University of Sao Paulo | 2022-01-31 |
| NCT02971683 | Trial to Evaluate the Efficacy and Safety of Abatacept in Combination With Standard Therapy Compared to Standard Therapy Alone in Improving Disease Activity in Adults With Active Idiopathic Inflammatory Myopathy | https://ClinicalTrials.gov/show/NCT02971683 | Active, not recruiting | Bristol-Myers Squibb | 2020-06-17 |
| NCT02810028 | Acceptance and Commitment Therapy for Muscle Disease | https://ClinicalTrials.gov/show/NCT02810028 | Completed | King’s College Hospital NHS Trust | 2018-04-30 |
| NCT02436096 | A Study to Evaluate eFFIcacy and Safety of Sublingual TNX-102 SL Tablet Taken at Bedtime in Patients With fibRoMyalgia | https://ClinicalTrials.gov/show/NCT02436096 | Completed | Tonix Pharmaceuticals, Inc. | 2016-09-30 |
| NCT02377921 | Phase 3 Randomized, Double-Blind, Placebo-Controlled Study to Evaluate Sialic Acid in Patients With Glucosamine (UDP-N-acetyl)-2-epimerase Myopathy (GNEM) or Hereditary Inclusion Body Myopathy (HIBM) | https://ClinicalTrials.gov/show/NCT02377921 | Completed | Ultragenyx Pharmaceutical Inc | 2017-06-09 |
| NCT02367014 | Safety, Tolerability, and Efficacy of MTP-131 for the Treatment of Mitochondrial Myopathy | https://ClinicalTrials.gov/show/NCT02367014 | Completed | Stealth BioTherapeutics Inc. | 2016-04-30 |
| NCT02362425 | Antioxidant Therapy in RYR1-Related Congenital Myopathy | https://ClinicalTrials.gov/show/NCT02362425 | Completed | National Institutes of Health Clinical Center (CC) | 2018-05-30 |
| NCT02358512 | Intermittent Versus Continuous Feeding in ICU Patients | https://ClinicalTrials.gov/show/NCT02358512 | Completed | Guy’s and St Thomas’ NHS Foundation Trust | 2018-01-31 |
| NCT02318875 | Investigation of Kritech Efficacy on Subjects Having Functional Discomfort Associated to Joints and Muscles Disorders | https://ClinicalTrials.gov/show/NCT02318875 | Completed | Vivatech | 2013-06-30 |
| NCT02255422 | RTA 408 Capsules in Patients With Mitochondrial Myopathy - MOTOR | https://ClinicalTrials.gov/show/NCT02255422 | Completed | Reata Pharmaceuticals, Inc. | 2017-11-02 |
| NCT02100241 | Effectiveness Analysis of Active Stretching Versus Active Stretching With Low Frequency Currents | https://ClinicalTrials.gov/show/NCT02100241 | Completed | RodrÃguez, Francisco Piqueras, M.D. | 2012-04-30 |
| NCT02090959 | An Extension Study of Ataluren (PTC124) in Participants With Nonsense Mutation Dystrophinopathy | https://ClinicalTrials.gov/show/NCT02090959 | Completed | PTC Therapeutics | 2018-06-21 |
| NCT03384420 | A Study to Evaluate the Safety and Therapeutic Effects of Transplantation of MNV-BM-BLD in Pediatric Patients With Pearson Syndrome | https://ClinicalTrials.gov/show/NCT03384420 | Enrolling by invitation | Minovia Therapeutics Ltd. | 2021-06-01 |
| NCT02078076 | IRM Cardiaque en Respiration Libre Pour Des Patients Atteints de Dystrophinopathie sévère | https://ClinicalTrials.gov/show/NCT02078076 | Completed | Institut National de la Santé Et de la Recherche Médicale, France | 2015-11-30 |
| NCT01270269 | ACT-ICU Study: Activity and Cognitive Therapy in the Intensive Care Unit | https://ClinicalTrials.gov/show/NCT01270269 | Completed | Vanderbilt University Medical Center | 2013-03-31 |
| NCT02020187 | Aerobic Training in Patients With Congenital Myopathies | https://ClinicalTrials.gov/show/NCT02020187 | Completed | Rigshospitalet, Denmark | 2014-11-30 |
| NCT02011282 | Electro-Neuro-Muscular Stimulation in ICU | https://ClinicalTrials.gov/show/NCT02011282 | Completed | University of Thessaly | 2015-03-31 |
| NCT01895283 | The Effect of Aerobic Exercise, on Fitness and Functional Muscle Strength, in Patients With Muscular Dystrophy | https://ClinicalTrials.gov/show/NCT01895283 | Completed | Rigshospitalet, Denmark | 2014-12-31 |
| NCT01830972 | An Open Label Phase 2 Extension Study of Higher Dose Sialic Acid-Extended Release (SA-ER) Tablets and Sialic Acid-Immediate Release (SA-IR) Capsules in Patients With Glucosamine (UDP-N-acetyl)-2-Epimerase (GNE) Myopathy | https://ClinicalTrials.gov/show/NCT01830972 | Completed | Ultragenyx Pharmaceutical Inc | 2017-02-14 |
| NCT01826487 | Phase 3 Study of Ataluren in Patients With Nonsense Mutation Duchenne Muscular Dystrophy | https://ClinicalTrials.gov/show/NCT01826487 | Completed | PTC Therapeutics | 2015-08-31 |
| NCT01634750 | Phase I Clinical Trial of ManNAc in Patients With GNE Myopathy or Hereditary Inclusion Body Myopathy (HIBM) | https://ClinicalTrials.gov/show/NCT01634750 | Completed | National Institutes of Health Clinical Center (CC) | NA |
| NCT01527318 | The Effect of Fibrate Therapy in Two Patients With Neutral Lipid Storage Disease With Myopathy (NLSDM) | https://ClinicalTrials.gov/show/NCT01527318 | Completed | Maastricht University Medical Center | 2012-12-31 |
| NCT01517880 | A Phase 2 Study to Evaluate the Dose and Pharmacodynamic Efficacy of Sialic Acid-Extended Release (SA-ER) Tablets in Patients With GNE Myopathy or Hereditary Inclusion Body Myopathy | https://ClinicalTrials.gov/show/NCT01517880 | Completed | Ultragenyx Pharmaceutical Inc | 2013-11-30 |
| NCT03268421 | Fibromyalgia Integrative Training for Adolescents With Juvenile Fibromyalgia | https://ClinicalTrials.gov/show/NCT03268421 | Recruiting | Children’s Hospital Medical Center, Cincinnati | 2022-10-31 |
| NCT01359319 | Safety and Pharmacokinetics of Sialic Acid Tables in Patients With Hereditary Inclusion Body Myopathy (HIBM) | https://ClinicalTrials.gov/show/NCT01359319 | Completed | Ultragenyx Pharmaceutical Inc | 2012-04-30 |
| NCT04262570 | Evaluation of Therapeutic Response in Spinal Muscular Atrophy Using Multispectral Optoacoustic Tomography (MSOT) and Magnetic Resonance Imaging (MRI) | https://ClinicalTrials.gov/show/NCT04262570 | Recruiting | University of Erlangen-Nürnberg Medical School | 2021-12-31 |
| NCT04262258 | Effects of a Blueberry Enriched Diet on the Skeletal Muscle Regenerative Process | https://ClinicalTrials.gov/show/NCT04262258 | Completed | Cornell University | 2019-12-31 |
| NCT04115475 | New Imaging Biomarkers for Muscular Diseases - Multispectral Optoacoustic Imaging in Spinal Muscular Atrophy | https://ClinicalTrials.gov/show/NCT04115475 | Active, not recruiting | University of Erlangen-Nürnberg Medical School | 2020-01-30 |
| NCT04025632 | Safety and Efficacy Study of Zilucoplan in Subjects With Immune-Mediated Necrotizing Myopathy | https://ClinicalTrials.gov/show/NCT04025632 | Recruiting | Ra Pharmaceuticals | 2020-11-30 |
| NCT03973203 | Niacin Supplementation in Healthy Controls and Mitochondrial Myopathy Patients | https://ClinicalTrials.gov/show/NCT03973203 | Completed | University of Helsinki | 2017-12-31 |
| NCT03918356 | Application of Electrical Impedance Myography (EIM) as a Potential Biomarker of Idiopathic Inflammatory Myopathies | https://ClinicalTrials.gov/show/NCT03918356 | Recruiting | Yale University | 2020-06-30 |
| NCT03888716 | A Phase Ia/Ib, SAD and MAD Study of of KL1333 in Healthy Subjects and Patients With Primary Mitochondrial Disease | https://ClinicalTrials.gov/show/NCT03888716 | Recruiting | NeuroVive Pharmaceutical AB | 2020-03-18 |
| NCT03862846 | A Study of the Safety of REN001 in Patients With Primary Mitochondrial Myopathy | https://ClinicalTrials.gov/show/NCT03862846 | Active, not recruiting | Reneo Pharma Ltd | 2020-06-30 |
| NCT03813485 | Electromyographic´s Differences Between Dry Needling in Tonic or Phasic Skeletal Muscle Fibers. | https://ClinicalTrials.gov/show/NCT03813485 | Recruiting | Universidad Francisco de Vitoria | 2019-04-10 |
| NCT03751644 | Peripherical Neuromuscular Electrical Stimulation in Systemic Autoimmune Myopathies | https://ClinicalTrials.gov/show/NCT03751644 | Recruiting | University of Sao Paulo | 2021-11-01 |
| NCT03749538 | Transcranial Current Stimulation in Patients With Systemic Autoimmune Myopathies | https://ClinicalTrials.gov/show/NCT03749538 | Recruiting | University of Sao Paulo | 2020-10-01 |
| NCT03728803 | Inspiratory Muscle Training in Nemaline Myopathy | https://ClinicalTrials.gov/show/NCT03728803 | Recruiting | Radboud University | 2020-07-31 |
| NCT03728777 | Resveratrol Supplementation in Patients With Mitochondrial Myopathies and Skeletal Muscle Fatty Acid Oxidation Disorders | https://ClinicalTrials.gov/show/NCT03728777 | Completed | Rigshospitalet, Denmark | 2019-10-01 |
| NCT03715777 | Electromyographic Study for the Help and Guidance of BoNTA Administration in the Treatment of Chronic Pelvic Floor Pain | https://ClinicalTrials.gov/show/NCT03715777 | Recruiting | Instituto de Investigacion Sanitaria La Fe | 2019-04-01 |
| NCT03693898 | MR in Patients With Collagen VI Related Myopathies | https://ClinicalTrials.gov/show/NCT03693898 | Recruiting | Rigshospitalet, Denmark | 2019-05-01 |
| NCT03627962 | Oculomotor Training and Chinese Characters Recognition in Children With Neuromuscular Disease | https://ClinicalTrials.gov/show/NCT03627962 | Completed | The Hong Kong Polytechnic University | 2017-04-30 |
| NCT03556150 | Effectiveness of a Manual Therapy Protocol in Patients With Masticatory Muscle Disorders | https://ClinicalTrials.gov/show/NCT03556150 | Completed | University of Alcala | 2018-09-03 |
| NCT03547687 | Neurosciences-Intensive Care Unit Electrical Stimulation | https://ClinicalTrials.gov/show/NCT03547687 | Completed | Oregon Health and Science University | 2019-12-31 |
| NCT03531554 | Acute Nutritional Ketosis in VLCAD Deficiency | https://ClinicalTrials.gov/show/NCT03531554 | Completed | University Medical Center Groningen | 2017-03-31 |
| NCT03440034 | Study of Pioglitazone in Sporadic Inclusion Body Myositis | https://ClinicalTrials.gov/show/NCT03440034 | Active, not recruiting | Johns Hopkins University | 2020-12-31 |
| NCT01259791 | Evaluation of Patients With Statin Myopathy Using an N of 1 Trial Design | https://ClinicalTrials.gov/show/NCT01259791 | Completed | Lawson Health Research Institute | 2013-08-31 |
| NCT01236898 | Pharmacokinetic Study on N-acetylneuraminic Acid | https://ClinicalTrials.gov/show/NCT01236898 | Completed | Tohoku University | 2011-06-30 |
| NCT00976807 | Rehabilitation Following Critical Illness | https://ClinicalTrials.gov/show/NCT00976807 | Completed | Guy’s and St Thomas’ NHS Foundation Trust | 2012-11-30 |
| NCT00952900 | An Implementation and Biobehavioral Study of Temporomandibular Joint and Muscle Disorder (TMJMD) | https://ClinicalTrials.gov/show/NCT00952900 | Completed | The University of Texas at Arlington | 2013-10-31 |
| NCT00937001 | Critical Illness Myopathy as a Cause of Debilitating ICU-Acquired Weakness | https://ClinicalTrials.gov/show/NCT00937001 | Active, not recruiting | Vanderbilt University Medical Center | 2010-01-31 |
| NCT03653663 | NIRS to Diagnose SAMS | https://ClinicalTrials.gov/show/NCT03653663 | Active, not recruiting | Hartford Hospital | 2020-02-29 |
| NCT01438788 | Low Protein Diet in Patients With Collagen VI Related Myopathies | https://ClinicalTrials.gov/show/NCT01438788 | Completed | Istituto Ortopedico Rizzoli | 2013-06-30 |
| NCT02346461 | An Open Label Phase 2 Study of ManNAc in Subjects With GNE Myopathy | https://ClinicalTrials.gov/show/NCT02346461 | Completed | National Institutes of Health Clinical Center (CC) | 2017-12-30 |
| NCT02101632 | Myorelaxant Effect of Bee Venom(BV) Topical Skin Application in Patients With RDC/TMD Ia and Ib | https://ClinicalTrials.gov/show/NCT02101632 | Completed | Medical University of Silesia | 2014-03-31 |
| NCT00609063 | The Effect of Statin Medications on Muscle Performance (The STOMP Study) | https://ClinicalTrials.gov/show/NCT00609063 | Completed | Hartford Hospital | 2011-06-30 |
| NCT00285181 | Effects of Statins on Pro- and Antioxidant Status : Link With Statin-Associated Myopathy. | https://ClinicalTrials.gov/show/NCT00285181 | Completed | University Hospital, Montpellier | NA |
| NCT00199745 | Differences in Atorvastatin Metabolite Ratios as a Diagnostic Tool in Detecting Atorvastatin Induced Myotoxicity | https://ClinicalTrials.gov/show/NCT00199745 | Completed | Oslo University Hospital | 2008-12-31 |
| NCT00195637 | Intravenous Immune Globulin to Treat Hereditary Inclusion Body Myopathy | https://ClinicalTrials.gov/show/NCT00195637 | Completed | National Institutes of Health Clinical Center (CC) | 2006-07-03 |
| NCT00120055 | Association Between Systemic Exposure of Atorvastatin and Metabolites and Atorvastatin-induced Myotoxicity | https://ClinicalTrials.gov/show/NCT00120055 | Completed | University of Oslo School of Pharmacy | NA |
| NCT00312234 | Qigong vs. Aerobic Exercise in the Treatment of Childhood Chronic Musculoskeletal Pain | https://ClinicalTrials.gov/show/NCT00312234 | Completed | The Hospital for Sick Children | 2007-08-31 |
| NCT00004770 | Pilot Compassionate Use Study of Thioctic Acid Treatment in Mitochondrial Myopathy | https://ClinicalTrials.gov/show/NCT00004770 | Completed | Office of Rare Diseases (ORD) | NA |
#If less then 500 studies
| nct_id | brief_title | link | overall_status | source | primary_completion_date |
|---|---|---|---|---|---|
| NCT03897803 | Elastography in Patients With Idiopathic Inflammatory Myopathies | https://ClinicalTrials.gov/show/NCT03897803 | Recruiting | Benha University | 2020-09-15 |
| NCT03819959 | Metabolomics Study on Intensive Care Acquired Muscle Weakness in Polytrauma | https://ClinicalTrials.gov/show/NCT03819959 | Recruiting | Technische Universität München | 2021-01-01 |
| NCT03250988 | Prevalence of Comorbid Spasticity and Urinary Incontinence in Residents of a Long-Term Care Facility | https://ClinicalTrials.gov/show/NCT03250988 | Completed | Vanderbilt University Medical Center | 2018-08-01 |
| NCT03211923 | Muscle Relaxation in Myopathies With Positive Muscle Phenomena | https://ClinicalTrials.gov/show/NCT03211923 | Enrolling by invitation | Radboud University | 2019-12-31 |
| NCT03211390 | Using Telemedicine to Improve Spasticity Diagnosis Rates | https://ClinicalTrials.gov/show/NCT03211390 | Completed | Vanderbilt University Medical Center | 2018-08-01 |
| NCT03209960 | Validity and Inter-Rater Reliability of a Novel Bedside Referral Tool for Spasticity | https://ClinicalTrials.gov/show/NCT03209960 | Completed | Vanderbilt University Medical Center | 2018-08-01 |
| NCT03092180 | Optimizing Treatment on Idiopathic Inflammatory Myopathies | https://ClinicalTrials.gov/show/NCT03092180 | Recruiting | University of Sao Paulo | 2019-01-31 |
| NCT03042286 | SAPhIRE Statin Adverse Drug Reaction | https://ClinicalTrials.gov/show/NCT03042286 | Recruiting | National Heart Centre Singapore | 2020-01-31 |
| NCT03018184 | Contractile Cross Sectional Areas and Muscle Strength in Patients With Congenital Myopathies | https://ClinicalTrials.gov/show/NCT03018184 | Active, not recruiting | Rigshospitalet, Denmark | 2018-08-31 |
| NCT02918032 | International Registry Study of Neutral Lipid Storage Disease (NLSD) / Triglyceride Deposit Cardiomyovasculopathy (TGCV) and Related Diseases | https://ClinicalTrials.gov/show/NCT02918032 | Recruiting | Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan | 2020-10-31 |
| NCT02911896 | Physical Function in Critical Care (PaciFIC) | https://ClinicalTrials.gov/show/NCT02911896 | Completed | University of Melbourne | 2016-12-31 |
| NCT02897921 | Clinical Importance of Carrier Status of Recessive Gene Mutations in Myopathy (CICS) | https://ClinicalTrials.gov/show/NCT02897921 | Active, not recruiting | Rigshospitalet, Denmark | 2020-05-31 |
| NCT02895789 | Oxidative Capacity and Exercise Tolerance in Ambulatory SMA | https://ClinicalTrials.gov/show/NCT02895789 | Recruiting | Columbia University | 2020-04-30 |
| NCT02704273 | A Clinical Assessment Study in X-Linked Myotubular Myopathy (XLMTM) Subjects | https://ClinicalTrials.gov/show/NCT02704273 | Completed | Audentes Therapeutics | 2019-09-30 |
| NCT02057705 | Prospective, Longitudinal Study of the Natural History and Functional Status of Patients With Myotubular Myopathy (MTM) | https://ClinicalTrials.gov/show/NCT02057705 | Completed | Valerion Therapeutics, LLC | 2017-06-26 |
| NCT00341679 | Studies of the Natural History and Pathogenesis of Autoimmune/Connective Tissue Diseases | https://ClinicalTrials.gov/show/NCT00341679 | Completed | National Institutes of Health Clinical Center (CC) | NA |
| NCT02453152 | Respiratory Muscle Function in Untreated X-Linked Myotubular Myopathy (XLMTM) | https://ClinicalTrials.gov/show/NCT02453152 | Completed | University of Florida | 2019-07-31 |
| NCT02362685 | Metabolic Exercise Testing | https://ClinicalTrials.gov/show/NCT02362685 | Recruiting | University Hospital, Brest | 2027-12-31 |
| NCT02231697 | A Medical Chart Review of Patients With X-Linked Myotubular Myopathy (XLMTM) | https://ClinicalTrials.gov/show/NCT02231697 | Completed | Audentes Therapeutics | 2019-12-31 |
| NCT03354767 | The Role of Ischaemia-reperfusion Injury in the Pathogenesis of Muscle Wasting After Thoracic Aortic Surgery | https://ClinicalTrials.gov/show/NCT03354767 | Completed | Imperial College London | 2014-10-31 |
| NCT01902940 | Natural History in CCFDN and IBM Syndromes | https://ClinicalTrials.gov/show/NCT01902940 | Completed | Ludwig-Maximilians - University of Munich | 2013-09-30 |
| NCT01840657 | Myotubular Myopathy Event Study | https://ClinicalTrials.gov/show/NCT01840657 | Completed | Cure CMD | 2015-10-31 |
| NCT01817946 | Myotubular Myopathy Genetic Testing Study | https://ClinicalTrials.gov/show/NCT01817946 | Completed | Cure CMD | 2017-03-31 |
| NCT01568658 | Genetic and Physical Study of Childhood Nerve and Muscle Disorders | https://ClinicalTrials.gov/show/NCT01568658 | Recruiting | National Institutes of Health Clinical Center (CC) | NA |
| NCT01553396 | Muscle Strength and Functional Autonomy of Elderly Women | https://ClinicalTrials.gov/show/NCT01553396 | Completed | Euro-American Network of Human Kinetics | 2009-02-28 |
| NCT01459302 | Genetic Study of Familial and Sporadic ALS/Motor Neuron Disease, Miyoshi Myopathy and Other Neuromuscular Disorders | https://ClinicalTrials.gov/show/NCT01459302 | Recruiting | University of Massachusetts, Worcester | 2021-10-31 |
| NCT01451281 | Studying Skeletal Muscle, Heart, and Diaphragm Imaging in Boys With Duchenne Muscular Dystrophy | https://ClinicalTrials.gov/show/NCT01451281 | Completed | National Institutes of Health Clinical Center (CC) | NA |
| NCT01417533 | A Natural History Study of Patients With GNE Myopathy | https://ClinicalTrials.gov/show/NCT01417533 | Recruiting | National Institutes of Health Clinical Center (CC) | NA |
| NCT01364714 | Biomechanical Properties in Intensive Care Unit (ICU) Survivors 12-month After Discharge | https://ClinicalTrials.gov/show/NCT01364714 | Completed | Rigshospitalet, Denmark | 2011-02-28 |
| NCT01353430 | Characterization of Inclusion Body Myopathy Associated With Paget’s Disease of Bone and Frontotemporal Dementia (IBMPFD) | https://ClinicalTrials.gov/show/NCT01353430 | Recruiting | University of California, Irvine | 2025-12-31 |
| NCT04193943 | Validation of Simplified Electrophysiological Examination in the Diagnosis of Critical Illness Myopathy or Neuropathy | https://ClinicalTrials.gov/show/NCT04193943 | Active, not recruiting | Università degli Studi di Brescia | 2014-11-26 |
| NCT03998540 | Improvement of DIAgnostic and Phenotype-genotype Correlation Studies in Patients With MYOpathy Suspected of TITinopathy | https://ClinicalTrials.gov/show/NCT03998540 | Recruiting | University Hospital, Montpellier | 2021-06-30 |
| NCT03936920 | Intra and Inter Reliability and Validity of the Turkish Version of Ottowa Sitting Scale in Intensive Care Unit Survivors | https://ClinicalTrials.gov/show/NCT03936920 | Active, not recruiting | Izmir Katip Celebi University | 2019-08-31 |
| NCT03753412 | Recovery From ICUAW Following Severe Respiratory and Cardiac Failure | https://ClinicalTrials.gov/show/NCT03753412 | Recruiting | Barts & The London NHS Trust | 2020-08-01 |
| NCT03714399 | Muscle Recovery Following Aortic Surgery Induced ICUAW. | https://ClinicalTrials.gov/show/NCT03714399 | Recruiting | Barts & The London NHS Trust | 2020-08-01 |
| NCT03619915 | Correlation Between Spirometry and Functional Independence in Adult Post-ICU Patients | https://ClinicalTrials.gov/show/NCT03619915 | Completed | Universidade Estadual do Oeste do Paraná | 2013-12-31 |
| NCT01047163 | Maintenance of Muscle Mass in Older People: the Negative Impact of Statin Therapy | https://ClinicalTrials.gov/show/NCT01047163 | Completed | University of Nottingham | 2011-03-31 |
| NCT02021071 | Virtual Path Planning for Image-guided Needle Interventions | https://ClinicalTrials.gov/show/NCT02021071 | Completed | Philips Healthcare | 2014-06-30 |
| NCT00735384 | Muscle Force Assessment in the Intensive Care Unit and in Primary Myopathies | https://ClinicalTrials.gov/show/NCT00735384 | Recruiting | University Hospital, Basel, Switzerland | 2020-12-31 |
| NCT00588432 | Characterization of Skeletal Muscle Using Magnetic Resonance Elastography (MRE) | https://ClinicalTrials.gov/show/NCT00588432 | Completed | Mayo Clinic | 2009-09-30 |
| NCT00272883 | Molecular and Genetic Studies of Congenital Myopathies | https://ClinicalTrials.gov/show/NCT00272883 | Recruiting | Boston Children’s Hospital | 2050-01-31 |
| NCT00004568 | Study of Inherited Neurological Disorders | https://ClinicalTrials.gov/show/NCT00004568 | Recruiting | National Institutes of Health Clinical Center (CC) | NA |
| NCT00001331 | Genetic and Family Studies of Inherited Muscle Diseases | https://ClinicalTrials.gov/show/NCT00001331 | Completed | National Institutes of Health Clinical Center (CC) | NA |
| NCT00004353 | Study of the Metabolism of Pyruvate and Related Problems in Patients With Lactic Acidemia | https://ClinicalTrials.gov/show/NCT00004353 | Completed | National Center for Research Resources (NCRR) | NA |
#If less then 500 registries
| nct_id | brief_title | link | overall_status | source | primary_completion_date |
|---|---|---|---|---|---|
| NCT02468895 | MYOPROSP - a Prospective Cohort Study in Myositis | https://ClinicalTrials.gov/show/NCT02468895 | Recruiting | University of Manchester | 2021-01-31 |
| NCT02398786 | Myotonic Dystrophy Family Registry | https://ClinicalTrials.gov/show/NCT02398786 | Recruiting | Myotonic Dystrophy Foundation | 2021-02-28 |
| NCT02327364 | Natural History of Pearson Syndrome | https://ClinicalTrials.gov/show/NCT02327364 | Enrolling by invitation | The Cleveland Clinic | 2020-09-30 |
| NCT02124616 | National Registry for Egyptian Pediatric Neuromuscular Diseases | https://ClinicalTrials.gov/show/NCT02124616 | Recruiting | Ain Shams University | 2020-04-30 |
| NCT01784679 | GNE-Myopathy Disease Monitoring Program (GNEM-DMP): A Registry and Prospective Observational Natural History Study to Assess GNE Myopathy or Hereditary Inclusion Body Myopathy (HIBM) | https://ClinicalTrials.gov/show/NCT01784679 | Completed | Ultragenyx Pharmaceutical Inc | 2017-11-30 |
| NCT04064307 | Myotubular and Centronuclear Myopathy Patient Registry | https://ClinicalTrials.gov/show/NCT04064307 | Recruiting | Newcastle-upon-Tyne Hospitals NHS Trust | 2020-04-30 |
| NCT04043832 | A New Method of Muscle Strength Testing Using a Quantitative Ultrasonic Technique and a Convolutional Neural Network | https://ClinicalTrials.gov/show/NCT04043832 | Completed | Peking University Third Hospital | 2019-05-15 |
| NCT04020159 | Global Registry for COL6-related Dystrophies | https://ClinicalTrials.gov/show/NCT04020159 | Recruiting | Newcastle-upon-Tyne Hospitals NHS Trust | 2020-10-31 |
| NCT04009226 | International GNE Myopathy Patient Registry | https://ClinicalTrials.gov/show/NCT04009226 | Recruiting | Newcastle University | 2020-12-31 |
| NCT01793168 | Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford | https://ClinicalTrials.gov/show/NCT01793168 | Recruiting | Sanford Health | 2100-12-31 |